Registration
| Date | Time |
|---|---|
| Thursday | 8:00 am - 6:00 pm |
| Friday | 8:00 am - 6:00 pm |
| Saturday | 9:00 am - 12:00 pm |
Camp Symposium & Childcare
Drop-off and pick-up will take place at Bluegill Foyer every day. Please note the times below allow for 30 minutes before and after the day’s activities for drop off and pick up.
| Date | Time |
|---|---|
| Thursday | 11:30 pm - 5:15 pm |
| Friday | 8:30 am - 5:30 pm |
| Saturday | 8:45 am - 4:15 pm |
Infusion Suite
| Date | Time |
|---|---|
| Thursday | 12:00 pm - 7:00 pm |
| Friday | 7:00 am - 7:00 pm |
| Saturday | 7:00 am - 4:00 pm |
Exhibit Hall
| Date | Time |
|---|---|
| Thursday | 5:00 pm - 7:00 pm |
| Friday |
8:30 am - 10:00 am 5:00 pm - 7:00 pm |
| Saturday | 12:00 pm - 1:30 pm |
Agenda at a glance
| DAY | SESSION | |
|---|---|---|
| Thursday, April 13 | 7:00 am - 12:00 pm | Annual Meeting of the HFA Board of Directors |
| Thursday, April 13 | 8:45 am - 12:00 pm | Policy Pre-Conference Forum |
| Thursday, April 13 | 11:00 am - 12:00 pm | Lunch |
| Thursday, April 13 | 11:00 am - 12:00 pm | Rap Session: LGBTQIA+ |
| Thursday, April 13 | 12:00 pm - 1:30 pm | Community Kick-Off |
| Thursday, April 13 | 1:45 pm - 2:45 pm | Rap Session: Blood Brotherhood |
| Thursday, April 13 | 1:45 pm - 2:45 pm | Rap Session: Blood Sisterhood |
| Thursday, April 13 | 1:45 pm - 2:45 pm | Rap Session: Families |
| Thursday, April 13 | 1:45 pm - 2:45 pm | Rap Session: Sangre Latina |
| Thursday, April 13 | 3:00 pm - 5:00 pm | Art Lounge: Open to Families |
| Thursday, April 13 | 3:00 pm - 4:00 pm | "Unspeakable" Episode 8 Screening |
| Thursday, April 13 | 4:00 pm - 5:00 pm | "Unspeakable" Let's Talk About It (Part 4) Panel |
| Thursday, April 13 | 6:00 pm - 7:00 pm | Rap Session: Spouses and Partners |
| Thursday, April 13 | 6:00 pm - 7:00 pm | Rap Session: Mild Matters |
| Thursday, April 13 | 7:00 pm - 9:00 pm | Industry Sponsored Dinner: Making Connections & Activating Resilience by Takeda |
| Thursday, April 13 | 9:00 pm - 10:00 pm | LGBTQIA+ Reception |
| Friday, April 14 | 7:00 am - 9:00 am | Industry Sponsored Breakfast: Our Journey with Hemophilia A and a Subcutaneous Prophylaxis by Genentech |
| Friday, April 14 | 10:15 am - 11:15 am | Improving Your Child's Health and Wellbeing with Brain-Based Parenting |
| Friday, April 14 | 10:15 am - 11:15 am | Diagnosing and Treating Females with Bleeding Disorders |
| Friday, April 14 | 10:15 am - 11:15 am | Aging with HIV |
| Friday, April 14 | 10:15 am - 11:15 am | Lean on Me, Physical Therapy |
| Friday, April 14 | 11:15 am - 1:15 am | Industry Sponsored Lunch: Women with Hemophilia, Now is Your Time by Novo Nordisk |
| Friday, April 14 | 1:30 pm - 2:30 pm | Processing the Emotional Impact of a Bleeding Disorder |
| Friday, April 14 | 1:30 pm - 2:30 pm | Mild Matters: Our Stories and Struggles, Sponsored by Takeda |
| Friday, April 14 | 1:30 pm - 2:30 pm | Sangrado Uterino Anormal / Abnormal Uterine Bleeding (in Spanish) |
| Friday, April 14 | 1:30 pm - 2:30 pm | Ensuring Equity: The Need for Diversity in Clinical Trials |
| Friday, April 14 | 3:00 pm - 4:00 pm | Trauma Through the Lifespan |
| Friday, April 14 | 3:00 pm - 4:00 pm | Self Care and Work (in Spanish) |
| Friday, April 14 | 3:00 pm - 4:00 pm | Memorial Art Therapy |
| Friday, April 14 | 3:00 pm - 4:00 pm | Partners in Health: Patient and Provider Perspectives in Shared Decision Making |
| Friday, April 14 | 3:00 pm - 4:00 pm | Short Factor Half-Lives, Switching Treatment Products and Understanding Inhibitor Risks |
| Friday, April 14 | 3:00 pm - 4:00 pm | Hemophilia Alliance: DDAVP NS (desmopressin acetate nasal spray) Availability Updates |
| Friday, April 14 | 4:15 pm - 5:15 pm | Celebration of Life |
| Friday, April 14 | 7:00 pm - 9:00 pm | Industry Sponsored Dinner: What's Your Common Factor? By Sanofi |
| Friday, April 14 | 7:00 pm - 9:00 pm | Industry Sponsored Dinner: Discover the Possibility of Higher Factor VIII Level for Longer |
| Saturday, April 15 | 8:00 am - 9:00 am | Breakfast |
| Saturday, April 15 | 9:00 am - 10:30 am | On the Horizon |
| Saturday, April 15 | 10:45 am - 11:45 am | On the Horizon: Q & A |
| Saturday, April 15 | 10:45 am - 11:45 am | Inhibitors 101 |
| Saturday, April 15 | 10:45 am - 11:45 am | Culpa del Portador/Carrier Guilt |
| Saturday, April 15 | 10:45 am - 11:45 am | Access Denied: Overcoming Insurance Barriers & Access Issues |
| Saturday, April 15 | 10:45 am - 11:45 am | Evolving Treatment Options for Mild Patients: Engaging your HTC as a Vital Resource |
| Saturday, April 15 | 12:00 pm - 1:30 pm | Lunch in the Exhibit Hall |
| Saturday, April 15 | 1:45 pm - 2:45 pm | Diagnosing and Treatment of von Willebrand Disease |
| Saturday, April 15 | 1:45 pm - 2:45 pm | Dads and Daughters |
| Saturday, April 15 | 1:45 pm - 2:45 pm | Como Contar tu Historia/How to Tell Your Story - Spanish Advocacy Presentation on Storytelling |
| Saturday, April 15 | 1:45 pm - 2:45 pm | Conversations with a Lawmaker: Insights on Advocacy and Policymaking |
| Saturday, April 15 | 3:00 pm - 4:00 pm | Annual Awards Celebration |
| Saturday, April 15 | 5:00 pm - 10:00 pm | Final Night Event at SeaWorld |
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