Insurance Barriers to Care
It’s inevitable — at some point in your bleeding disorders journey you are likely to face an insurance barrier. Now it is your opportunity to ask questions to a panel of bleeding disorders policy experts. We will share common insurance issues and the pathways to resolution.
Moderated by Sonji Wilkes, CAE.
Mark Hobraczk, JD, MPA
Mark Hobraczk is the newest member of the HFA advocacy team, serving as the Senior Manager for Policy. He has worked on behalf of the bleeding disorders community for 15 years through the government relations team at Patient Services Inc. and the ACCESS Program (which provides legal representation to persons applying for federal disability benefits.)
Mark previously had a decade of experience expanding access to care for exceptionally high-cost medical treatments, including cochlear implants, home infusion therapies, home oxygen, and power wheelchairs. He managed the institutional reimbursement programs for Wyoming Medicaid, supervised the reimbursement department for a medical device manufacturer, and directed government relations efforts for national associations representing hearing/speech professionals and medical equipment suppliers.
Mark received a Juris Doctor from the University of Denver, a Master of Public Administration from the George Washington University, and a Bachelor’s in Economics from Rutgers University.
Marla Feinstein is a native of New York, and graduate of Boston University where she was a trustee scholar. She completed her graduate work in physiology and molecular biophysics at the University of Washington in Seattle where she was awarded a National Institute of Health pre-doctoral training fellowship. She presented and published extensively throughout her time in academic science. In 2011, she completed an MPH in health policy from Columbia University Mailman School of Public Health. While at Columbia, she researched and published articles about state and federal health policy issues affecting the under and uninsured and was finalist for the John and Kathleen Gorman Public Health Humanitarian Award. In addition, she was a consultant for the NYS Governor’s office and Department of Health.
Marla is current the senior policy and healthcare analyst for the National Hemophilia Foundation. As an analyst, Marla has been instrumental in advocating for the bleeding disorders community at the national and state level. Her current efforts focus on ensuring access to care for individuals with bleeding disorders. She has presented on behalf of NHF at numerous national and community-based meetings of government and industry stakeholders.
Miriam Goldstein, JD
Miriam is Director of Policy and Principal Legal Counsel with HFA, where her work includes monitoring and analyzing federal legislation and regulations impacting patient access to care; insurance, Medicaid, and Medicare issues; blood and product safety; and more. Before joining HFA, Miriam worked as a lawyer with the federal government, served for many years on the board of her local hemophilia association (HACA), and volunteered with the Committee of Ten Thousand.
Miriam lives in Arlington, Virginia, and is the mother of two adult sons with hemophilia. She graduated from Yale University (BA) and the University of Pennsylvania Law School (JD).