Punch Out Your Insurance Frustrations
If you ever feel like you have been put through the ringer by your insurance company, this session is for you! Work out your frustrations with us during an interactive game where our team of experts will review key health care and access issues.
Michelle’s passion for advocacy for the bleeding disorder community has been an integral part of her career. As the mother of 2 sons with severe hemophilia and a patient herself, she has been involved in the bleeding disorder community in various capacities, both personal and professional, for 31 years.
Sonji Wilkes CAE, graduated Magna Cum Laude with a Bachelor of Arts in Behavioral Science and certificate in Public Administration from the Metropolitan State University of Denver in 2001. She holds an executive certificate in NonProfit Management from Georgetown University and earned the Certified Associations Executive (CAE) designation from ASAE in 2021. After a decade of advocacy work that led to her family’s insurance struggles being published by multiple national and international media, as well as being recognized by the White House, Sonji joined the Hemophilia Federation of America in 2013 and has served as a Program Manager for the HFA Families Program, coordinating educational and advocacy outreach for parents of children with bleeding disorders. She halso previously served as HFA’s Communications Manager, overseeing HFA’s digital communications, and since 2016 has been engaging and empowering community advocates within HFA’s policy and advocacy team. She currently leads policy and advocacy efforts as HFA’s Vice President of Policy and Advocacy. Sonji is intimately familiar with the challenge of caring for a child with a chronic disorder as her son has hemophilia with inhibitors, and in 2019 testified before a Congressional committee about some of those challenges. She knows the difficulty of managing a disorder medically while also navigating the health care system and is dedicated to helping other families better understand how to advocate for themselves and their families.