Rap Session: Mild Bleeding Disorders
This roundtable discussion is open to all those who are 18+ and have (or are seeking diagnosis for) a mild bleeding disorder. People who are diagnosed as “carriers” or “symptomatic carriers” are also welcome. This session will be closed to industry representatives unless the representative also has a mild bleeding disorder. Come share experiences and gain insight.
Shellye Horowitz is the Associate Director of Education at the Hemophilia Federation of America. She has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family, impacting both men and women. Shellye has given presentations and worked on committees focused on increasing awareness of diagnosis and treatment for women with bleeding disorders. Shellye wrote a column for Hemophilia News Today that addressed issues regarding women and bleeding disorders called “The Forgotten Factor”. Prior to her work in hemophilia, Shellye had over 25 years of experience in the field of K-12 education, working as both a school counselor and principal. She worked in three US states and was Head of an American international school abroad. Shellye‘s hobbies include International folk dance, ham radio, geocaching, knitting, hiking, gardening, home improvement projects, and walking her dog, Hope, on the beach.