The Hemophilia Alliance and HTCs: Sustaining the Comprehensive Care Model for Bleeding and Clotting Disorder Patients
For decades, Hemophilia Treatment Centers (HTCs) have served as the medical home for bleeding and clotting disorder patients across the country. The Hemophilia Alliance supports its HTC members in this critical work. Join us to learn more about the HTC network, its requirements, and how we can sustain the comprehensive care model for future generations of patients.
Elizabeth Karan serves as General Counsel for the Hemophilia Alliance, working with HTCs across the country on issues related to the 340B Discount Drug Pricing Program, federal grants, and other compliance concerns. Prior to starting her own firms, Elizabeth worked as a Senior Associate at Feldesman Tucker Leifer Fidell LLP in Washington, DC for over six years and worked the U.S. Senate Finance Committee through the David A. Winston Fellowship. Elizabeth earned her J.D. and M.P.H. degrees from the University of Minnesota.
Joe Pugliese serves as President & CEO of the Hemophilia Alliance, which works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders. Joe has been in the hemophilia community since 1977 and has worked in both industry, pharmacy and for the last 16 years has been at the Alliance. His work has been recognized by NHF, Coalition for Hemophilia B and Patient Services Inc. He chaired The Alliance Pharmacy board from 2010 -2017 and still serves as an active Director. He founded the Hemophilia Alliance Foundation in 2013 and has served on the boards of THSNA and WFH USA.